{"id":26967,"date":"2023-06-05T11:32:44","date_gmt":"2023-06-05T11:32:44","guid":{"rendered":"https:\/\/sbpt.org.br\/portal\/?p=26967"},"modified":"2023-06-05T11:32:44","modified_gmt":"2023-06-05T11:32:44","slug":"conitec-consulta-publica-fibrose-cistica","status":"publish","type":"post","link":"https:\/\/sbpt.org.br\/portal\/conitec-consulta-publica-fibrose-cistica\/","title":{"rendered":"Conitec abre Consulta P\u00fablica sobre terapia tripla que pode revolucionar o tratamento da fibrose c\u00edstica no SUS"},"content":{"rendered":"<p style=\"text-align: justify\">A Comiss\u00e3o Nacional de Incorpora\u00e7\u00f5es de Tecnologias no SUS (Conitec) abriu a <a href=\"https:\/\/www.gov.br\/conitec\/pt-br\/assuntos\/participacao-social\/consultas-publicas\" target=\"_blank\" rel=\"noopener noreferrer\">Consulta P\u00fablica n\u00ba 18<\/a> sobre o Elexacaftor\/Tezacaftor\/Ivacaftor (Trikafta\u00ae) para o tratamento de pacientes com fibrose c\u00edstica com seis anos de idade ou mais com ao menos uma muta\u00e7\u00e3o f508del no gene regulador de condu\u00e7\u00e3o transmembrana de fibrose c\u00edstica (FC).<\/p>\n<p style=\"text-align: justify\"><strong><a href=\"https:\/\/www.gov.br\/conitec\/pt-br\/assuntos\/participacao-social\/consultas-publicas\" target=\"_blank\" rel=\"noopener noreferrer\">Contribua aqui<\/a><\/strong><strong>. O prazo para enviar o formul\u00e1rio \u00e9 13\/06\/2023.<\/strong><\/p>\n<p style=\"text-align: justify\">A Sociedade Brasileira de Pneumologia e Tisiologia \u00e9 <a href=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt.org.br\/portal\/wp-content\/uploads\/2022\/11\/Parecer_SBPT_Trikafta.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">favor\u00e1vel \u00e0 incorpora\u00e7\u00e3o da tecnologia<\/a> e prop\u00f5e aos profissionais da sa\u00fade e \u00e0 comunidade que se unam em manifesta\u00e7\u00e3o pela qualidade de vida de tantos pacientes com FC, uma doen\u00e7a gen\u00e9tica de car\u00e1ter progressivo e irrevers\u00edvel que afeta m\u00faltiplos \u00f3rg\u00e3os (sistemas respirat\u00f3rio, digest\u00f3rio, hep\u00e1tico e genitourin\u00e1rio), com sintomas cr\u00f4nicos e rotina exaustiva de tratamentos di\u00e1rios.<\/p>\n<p style=\"text-align: justify\">O uso do ELX\/TEZ\/IVA no Brasil foi <a href=\"https:\/\/www.gov.br\/anvisa\/pt-br\/assuntos\/medicamentos\/novos-medicamentos-e-indicacoes\/trikafta-r-elexacaftor-tezacaftor-ivacaftor-novo-registro\" target=\"_blank\" rel=\"noopener noreferrer\">aprovado<\/a> pela Ag\u00eancia Nacional de Vigil\u00e2ncia Sanit\u00e1ria (Anvisa) em mar\u00e7o de 2022. Estudos randomizados e ensaios de vida real demonstraram que o medicamento \u00e9 seguro e promove melhora da fun\u00e7\u00e3o pulmonar, melhora de les\u00f5es de seios paranasais e pulmonares, redu\u00e7\u00e3o de exacerba\u00e7\u00f5es, redu\u00e7\u00e3o de hospitaliza\u00e7\u00f5es e melhora nutricional dos pacientes com ao menos uma muta\u00e7\u00e3o f508del.<\/p>\n<p style=\"text-align: justify\">O medicamento dispon\u00edvel atualmente no SUS (Ivacaftor) foi o primeiro modulador da prote\u00edna CFTR aprovado no pa\u00eds e tem excelente resposta. Por\u00e9m, \u00e9 restrito a poucas muta\u00e7\u00f5es e atende cerca de 60 pacientes com FC. Segundo o Registro do Grupo Brasileiro de Estudos da Fibrose C\u00edstica de 2020 (<a href=\"http:\/\/portalgbefc.org.br\/ckfinder\/userfiles\/files\/REBRAFC_2020.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">REBRAFC<\/a>), existem 6.112 pacientes com FC no Brasil e cerca de 1.600 seriam eleg\u00edveis para a Trikafta\u00ae. Todos os pacientes com muta\u00e7\u00e3o no f508del s\u00e3o ou ser\u00e3o eleg\u00edveis para a medica\u00e7\u00e3o.<\/p>\n<p style=\"text-align: justify\">Para enviar seu parecer, \u00e9 necess\u00e1rio ter uma conta no site gov.br. <a href=\"https:\/\/www.gov.br\/conitec\/pt-br\/assuntos\/participacao-social\/consultas-publicas\" target=\"_blank\" rel=\"noopener noreferrer\">Participe<\/a>!<\/p>\n","protected":false},"excerpt":{"rendered":"A Comiss\u00e3o Nacional de Incorpora\u00e7\u00f5es de Tecnologias no SUS (Conitec) abriu a Consulta P\u00fablica n\u00ba 18 sobre o Elexacaftor\/Tezacaftor\/Ivacaftor (Trikafta\u00ae) para o tratamento de pacientes com fibrose c\u00edstica com seis anos de idade ou mais com ao menos uma muta\u00e7\u00e3o f508del no gene regulador de condu\u00e7\u00e3o transmembrana de fibrose c\u00edstica (FC). Contribua aqui. O prazo [\u2026]","protected":false},"author":3,"featured_media":19942,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"footnotes":""},"categories":[68],"tags":[1309,164,810,1325,111,1214],"class_list":["post-26967","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","tag-fc","tag-fibrose-cistica","tag-gbefc","tag-rebrafc","tag-sus","tag-trikafta"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Contribua para revolucionar o tratamento da fibrose c\u00edstica no SUS<\/title>\n<meta name=\"description\" content=\"A Conitec abriu Consulta P\u00fablica sobre o Elexacaftor\/Tezacaftor\/Ivacaftor (Trikafta\u00ae) para o tratamento de pacientes com fibrose c\u00edstica.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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