{"id":21354,"date":"2021-09-17T14:20:39","date_gmt":"2021-09-17T14:20:39","guid":{"rendered":"https:\/\/sbpt.org.br\/portal\/?p=21354"},"modified":"2021-09-17T14:20:39","modified_gmt":"2021-09-17T14:20:39","slug":"associacoes-pacientes-sbpt","status":"publish","type":"post","link":"https:\/\/sbpt.org.br\/portal\/associacoes-pacientes-sbpt\/","title":{"rendered":"SBPT convoca associa\u00e7\u00f5es de pacientes para somar esfor\u00e7os"},"content":{"rendered":"<p style=\"text-align: justify\">A Sociedade Brasileira de Pneumologia e Tisiologia (SBPT) considera o papel das associa\u00e7\u00f5es de pacientes fundamental para expandir o conhecimento sobre doen\u00e7as respirat\u00f3rias, apoiar as fam\u00edlias e desenvolver pesquisas e projetos a n\u00edvel nacional.<\/p>\n<p style=\"text-align: justify\">Por isso, criamos um <a href=\"https:\/\/forms.gle\/ncJXNGjgF6VqbCqFA\" target=\"_blank\" rel=\"noopener noreferrer\">question\u00e1rio<\/a> para catalogar associa\u00e7\u00f5es de pacientes consolidadas e atuantes, que tenham um corpo diretivo bem definido. O objetivo \u00e9 auxiliar nas demandas internas e firmar parcerias para projetos conjuntos.<\/p>\n<p style=\"text-align: justify\">\u201cA parceria entre sociedades m\u00e9dicas e associa\u00e7\u00f5es de pacientes ajuda a mover o conhecimento cient\u00edfico, estimula os pacientes a conhecerem mais sobre a sua doen\u00e7a e, muitas vezes, fornece o apoio necess\u00e1rio para que os profissionais da sa\u00fade orientem esses pacientes da melhor forma\u201d, opina o Dr. Bruno Baldi, pneumologista do InCor, editor do Jornal Brasileiro de Pneumologia e membro do Comit\u00ea Cient\u00edfico da Associa\u00e7\u00e3o dos Portadores de Linfangioleiomiomatose (<a href=\"https:\/\/www.alambrabrasil.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">ALAMBRA<\/a>) e autor de mais de 25 publica\u00e7\u00f5es sobre o tema.<\/p>\n<p style=\"text-align: justify\">Portanto, a parceria contribui para o avan\u00e7o no manejo da doen\u00e7a e gera benef\u00edcios para os pacientes. \u201cAl\u00e9m disso, essa coopera\u00e7\u00e3o pode abrir caminhos para o acesso a direitos como redu\u00e7\u00e3o do imposto de renda, acesso gratuito a transporte p\u00fablico, uso de oxig\u00eanio suplementar, entre outras garantias que os pacientes t\u00eam quando s\u00e3o portadores de determinadas doen\u00e7as. Em \u00faltima an\u00e1lise, o m\u00e9dico tem participa\u00e7\u00e3o cient\u00edfica, assistencial e, de certa forma, social tamb\u00e9m. E todo mundo sai ganhando\u201d, afirma o Dr. Bruno.<\/p>\n<p style=\"text-align: justify\">De acordo com o especialista, os principais desafios que as associa\u00e7\u00f5es enfrentam \u00e9 a disponibilidade de tempo das pr\u00f3prias pacientes para se dedicarem \u00e0s demandas, dos profissionais de sa\u00fade para darem suporte e a sustenta\u00e7\u00e3o financeira para desenvolver seus projetos. \u201cNo exterior, a manuten\u00e7\u00e3o das associa\u00e7\u00f5es funciona por meio de doa\u00e7\u00f5es e muitas vezes com o apoio do governo, mas aqui no Brasil ainda n\u00e3o temos essa cultura bem definida\u201d, observa o m\u00e9dico.<\/p>\n<p style=\"text-align: justify\">Nesse sentido, a SBPT pretende auxiliar na sensibiliza\u00e7\u00e3o sobre as doen\u00e7as respirat\u00f3rias e no alcance da informa\u00e7\u00e3o para que a comunidade, os profissionais da sa\u00fade e os pacientes sejam mais fortalecidos e tenham mais sucesso nos seus objetivos.<\/p>\n<p style=\"text-align: justify\">Se voc\u00ea faz parte de uma associa\u00e7\u00e3o de pacientes, <a href=\"https:\/\/forms.gle\/ncJXNGjgF6VqbCqFA\" target=\"_blank\" rel=\"noopener noreferrer\">responda ao question\u00e1rio proposto pela SBPT<\/a>.<\/p>\n<p><a href=\"https:\/\/forms.gle\/ncJXNGjgF6VqbCqFA\" target=\"_blank\" rel=\"noopener noreferrer\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-medium wp-image-21355\" src=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/09\/team_work_destaque-300x219.png\" alt=\"\" width=\"300\" height=\"219\" srcset=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/09\/team_work_destaque-300x219.png 300w, https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/09\/team_work_destaque.png 350w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p>Imagem: rawpixel.com \/ freepik<\/p>\n<!-- AddThis Advanced Settings generic via filter on the_content --><!-- AddThis Share Buttons generic via filter on the_content -->","protected":false},"excerpt":{"rendered":"<p>A Sociedade Brasileira de Pneumologia e Tisiologia (SBPT) considera o papel das associa\u00e7\u00f5es de pacientes fundamental para expandir o conhecimento sobre doen\u00e7as respirat\u00f3rias, apoiar as fam\u00edlias e desenvolver pesquisas e projetos a n\u00edvel nacional. Por isso, criamos um question\u00e1rio para catalogar associa\u00e7\u00f5es de pacientes consolidadas e atuantes, que tenham um corpo diretivo bem definido. O [&hellip;]<!-- AddThis Advanced Settings generic via filter on get_the_excerpt --><!-- AddThis Share Buttons generic via filter on get_the_excerpt --><\/p>\n","protected":false},"author":3,"featured_media":21355,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"footnotes":""},"categories":[68],"tags":[1019,1020],"class_list":["post-21354","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","tag-alambra","tag-paciente"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>SBPT convoca associa\u00e7\u00f5es de pacientes para somar esfor\u00e7os<\/title>\n<meta name=\"description\" content=\"A Sociedade Brasileira de Pneumologia e Tisiologia (SBPT) considera o papel das associa\u00e7\u00f5es de pacientes fundamental para expandir o conhecimento 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