{"id":19767,"date":"2021-06-09T14:25:12","date_gmt":"2021-06-09T14:25:12","guid":{"rendered":"https:\/\/sbpt.org.br\/portal\/?p=19767"},"modified":"2021-06-09T14:25:12","modified_gmt":"2021-06-09T14:25:12","slug":"lam-junho","status":"publish","type":"post","link":"https:\/\/sbpt.org.br\/portal\/lam-junho\/","title":{"rendered":"Junho: m\u00eas de aten\u00e7\u00e3o \u00e0 linfangioleiomiomatose (LAM)"},"content":{"rendered":"<p style=\"text-align: justify\">A LAM \u00e9 uma doen\u00e7a rara que afeta sobretudo as mulheres em idade f\u00e9rtil. Recentemente, a Conitec confirmou a publica\u00e7\u00e3o do protocolo de uso do sirolimo para o tratamento de alguns casos de LAM.<\/p>\n<p style=\"text-align: justify\">A Conitec tamb\u00e9m validou a amplia\u00e7\u00e3o do uso da dosagem s\u00e9rica do medicamento para pacientes adultas com LAM.<\/p>\n<p style=\"text-align: justify\">Com a regulamenta\u00e7\u00e3o, os m\u00e9dicos de todo o pa\u00eds ter\u00e3o mais facilidade de solicitar o medicamento pelo Sistema \u00danico de Sa\u00fade (SUS). No entanto, h\u00e1 indica\u00e7\u00f5es espec\u00edficas para o sirolimo, como nos casos em que ocorre progress\u00e3o da doen\u00e7a, quilot\u00f3rax e tumores renais\u00b9, conforme explica a pneumologista da Comiss\u00e3o Cient\u00edfica de Doen\u00e7a Pulmonar Avan\u00e7ada e Doen\u00e7as Raras da SBPT, dra. Carolina Salim.<\/p>\n<p style=\"text-align: justify\">A LAM \u00e9 caracterizada, principalmente, por cistos de paredes finas que se apresentam difusamente, principalmente nos pulm\u00f5es, sistema linf\u00e1tico e rins. A doen\u00e7a pode progredir de forma diferente em cada paciente. O papel do especialista \u00e9 tentar diminuir e, se poss\u00edvel, estacionar essa evolu\u00e7\u00e3o.<\/p>\n<p style=\"text-align: justify\">Um grande desafio com rela\u00e7\u00e3o \u00e0 LAM \u00e9 o subdiagn\u00f3stico pela falta de conhecimento da doen\u00e7a e pouco acesso \u00e0 tomografia em alguns locais do Brasil. \u201cH\u00e1 uma s\u00e9rie de crit\u00e9rios para o diagn\u00f3stico, mas a principal caracter\u00edstica da doen\u00e7a aparece na tomografia. E o padr\u00e3o ouro para confirma\u00e7\u00e3o da LAM \u00e9 a bi\u00f3psia pulmonar\u201d, informa a pneumologista.<\/p>\n<p style=\"text-align: justify\">Segundo ela, por causa da Covid-19, mais pacientes se conscientizaram sobre a import\u00e2ncia da sa\u00fade dos pulm\u00f5es. Al\u00e9m disso, o n\u00famero de tomografias aumentou, o que eleva tamb\u00e9m as chances de achados caracter\u00edsticos de LAM.<\/p>\n<p style=\"text-align: center\"><a href=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/06\/linfangioleiomiomatose.png\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-19772 size-large\" src=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/06\/linfangioleiomiomatose-1024x1024.png\" alt=\"\" width=\"640\" height=\"640\" srcset=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/06\/linfangioleiomiomatose-1024x1024.png 1024w, https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/06\/linfangioleiomiomatose-300x300.png 300w, https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/06\/linfangioleiomiomatose-150x150.png 150w, https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/06\/linfangioleiomiomatose-768x768.png 768w, https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2021\/06\/linfangioleiomiomatose.png 1080w\" sizes=\"auto, (max-width: 640px) 100vw, 640px\" \/><\/a><\/p>\n<p style=\"text-align: justify\">De acordo com a Associa\u00e7\u00e3o dos Portadores de Linfangioleiomiomatose (ALAMBRA), o pr\u00f3ximo passo ser\u00e1 a inclus\u00e3o dos atributos para o medicamento na tabela do SUS. Para mais informa\u00e7\u00f5es, acesse o <a href=\"https:\/\/www.instagram.com\/alambrasil\/\" target=\"_blank\" rel=\"noopener noreferrer\">Instagram<\/a> da ALAMBRA.<\/p>\n<hr \/>\n<p style=\"text-align: justify\">\u00b9 Freitas CSG, Baldi BG, Ara\u00fajo MS, Heiden GI, Kairalla RA, Carvalho CRR. <a href=\"https:\/\/www.jornaldepneumologia.com.br\/details\/2411\/en-US\/uso-de-sirolimo-no-tratamento-de-linfangioleiomiomatose--resposta-favoravel-em-pacientes-com-diferentes-manifestacoes-extrapulmonares\">Use of sirolimus in the treatment of lymphangioleiomyomatosis: favorable responses in patients with different extrapulmonary manifestations<\/a>. J Bras Pneumol. 2015;41(3):275-280.<\/p>\n<!-- AddThis Advanced Settings generic via filter on the_content --><!-- AddThis Share Buttons generic via filter on the_content -->","protected":false},"excerpt":{"rendered":"<p>A LAM \u00e9 uma doen\u00e7a rara que afeta sobretudo as mulheres em idade f\u00e9rtil. Recentemente, a Conitec confirmou a publica\u00e7\u00e3o do protocolo de uso do sirolimo para o tratamento de alguns casos de LAM. A Conitec tamb\u00e9m validou a amplia\u00e7\u00e3o do uso da dosagem s\u00e9rica do medicamento para pacientes adultas com LAM. Com a regulamenta\u00e7\u00e3o, [&hellip;]<!-- AddThis Advanced Settings generic via filter on get_the_excerpt --><!-- AddThis Share Buttons generic via filter on get_the_excerpt --><\/p>\n","protected":false},"author":3,"featured_media":19773,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"footnotes":""},"categories":[68],"tags":[796],"class_list":["post-19767","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","tag-lam"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Junho: m\u00eas de aten\u00e7\u00e3o \u00e0 linfangioleiomiomatose (LAM)<\/title>\n<meta name=\"description\" content=\"A LAM \u00e9 uma doen\u00e7a rara que afeta sobretudo as mulheres. 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