{"id":17032,"date":"2020-09-03T13:30:55","date_gmt":"2020-09-03T13:30:55","guid":{"rendered":"https:\/\/sbpt.org.br\/portal\/?p=17032"},"modified":"2020-09-03T13:30:55","modified_gmt":"2020-09-03T13:30:55","slug":"fibrose-cistica-2020","status":"publish","type":"post","link":"https:\/\/sbpt.org.br\/portal\/fibrose-cistica-2020\/","title":{"rendered":"Setembro: m\u00eas de conscientiza\u00e7\u00e3o sobre a fibrose c\u00edstica"},"content":{"rendered":"<p style=\"text-align: justify\">Dia 5 de setembro \u00e9 o Dia Nacional de Conscientiza\u00e7\u00e3o e Divulga\u00e7\u00e3o da Fibrose C\u00edstica (FC). Veja as atualiza\u00e7\u00f5es da SBPT sobre o tema.<\/p>\n<ul>\n<li style=\"text-align: justify\">14\/08\/2020 &#8211; <strong>Podcast<\/strong> <strong>Direto ao Ponto: Efetividade de um protocolo de tratamento de erradica\u00e7\u00e3o em fases da Pseudomonas aeruginosa em crian\u00e7as com fibrose c\u00edstica no Brasil &#8211; <\/strong>Dra. Fab\u00edola Villac Adde:<\/li>\n<\/ul>\n<ul>\n<li style=\"text-align: justify\">28\/05\/2020 &#8211; <strong>Pneumopediatria e Fibrose C\u00edstica<\/strong> \u2013 Dr. Diego Brandemburg, Dr. Rodrigo Athanazio, Dr. Luiz Vicente da Silva Filho e Dra. Luciana Monte:<\/li>\n<\/ul>\n<p><iframe loading=\"lazy\" title=\"Debate Interativo SBPT (28\/05\/2020)\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/brP58vxhAdI?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<ul>\n<li style=\"text-align: justify\">16\/04\/2020 &#8211; <strong><a href=\"https:\/\/sbpt.org.br\/portal\/\/fibrose-cistica-covid-sbpt\/\" target=\"_blank\" rel=\"noopener noreferrer\">Nota de posicionamento sobre o manejo da fibrose c\u00edstica diante da COVID-19.<\/a><\/strong><\/li>\n<\/ul>\n<h4>Fibrose c\u00edstica<\/h4>\n<p style=\"text-align: justify\">Hoje, h\u00e1 medicamentos que atuam diretamente no defeito gen\u00e9tico da prote\u00edna e permitem que o paciente com fibrose c\u00edstica viva por mais tempo e com mais qualidade de vida, se acompanhado por especialistas desde a inf\u00e2ncia at\u00e9 a fase adulta.<\/p>\n<p style=\"text-align: justify\">De acordo com o coordenador da Comiss\u00e3o Cient\u00edfica de Fibrose C\u00edstica da SBPT, dr. Rodrigo Athanazio, \u00e9 importante ficar atento aos par\u00e2metros que determinam a gravidade da doen\u00e7a.<\/p>\n<p style=\"text-align: justify\">O exame de fun\u00e7\u00e3o pulmonar \u00e9 um dos mais importantes, junto com o estado nutricional, cultura de escarro e o \u00cdndice de Massa Corp\u00f3rea (IMC).<\/p>\n<p style=\"text-align: center\"><a href=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2020\/09\/setembro-fibrose-c\u00edstica.png\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-17052 size-medium\" src=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2020\/09\/setembro-fibrose-c\u00edstica-300x300.png\" alt=\"\" width=\"300\" height=\"300\" \/><\/a><\/p>\n<h4>Tratamento<\/h4>\n<p style=\"text-align: justify\">\u201cCom a maior sobrevida, o pneumologista deve estar preparado para acompanhar o indiv\u00edduo durante toda a trajet\u00f3ria da terapia: com prescri\u00e7\u00e3o de dornase alfa para clarear e expectorar o excesso de muco nos pulm\u00f5es, salina hipert\u00f4nica 7% ajuda a fluidificar as secre\u00e7\u00f5es e nebuliza\u00e7\u00e3o com antibi\u00f3ticos para prevenir infec\u00e7\u00f5es\u201d, explica o especialista.<\/p>\n<p style=\"text-align: justify\">\u201cEm caso de inflama\u00e7\u00e3o cr\u00f4nica, a azitromicina tr\u00eas vezes na semana tem a\u00e7\u00e3o anti-inflamat\u00f3ria e imunomoduladora. Se houver altera\u00e7\u00e3o da fun\u00e7\u00e3o pulmonar, os broncodilatadores s\u00e3o prescritos para melhorar a ventila\u00e7\u00e3o\u201d, completa.<\/p>\n<p style=\"text-align: justify\">Em 80% dos casos, \u00e9 necess\u00e1rio repor enzimas pancre\u00e1ticas para auxiliar a digest\u00e3o e a absor\u00e7\u00e3o de nutrientes. O tratamento exige reidrata\u00e7\u00e3o, reposi\u00e7\u00e3o de s\u00f3dio e boa nutri\u00e7\u00e3o do paciente, por meio de dieta rica em calorias e reposi\u00e7\u00e3o das vitaminas lipossol\u00faveis A, D, E, K.<\/p>\n<p style=\"text-align: justify\">O pneumologista ressalta que os fluidos corporais ficam mais espessos em geral, por isso, a bile produzida pelo f\u00edgado tamb\u00e9m pode ficar mais densa, aumentando o risco de cirrose. Nestes casos, o uso de \u00e1cido ursodesoxic\u00f3lico evita les\u00e3o hep\u00e1tica progressiva.<\/p>\n<p style=\"text-align: justify\">\u201cEm \u00faltima inst\u00e2ncia, quando as medidas anteriores n\u00e3o s\u00e3o suficientes e a capacidade respirat\u00f3ria (VEF1) est\u00e1 abaixo de 30%, se considera o transplante pulmonar\u201d, esclarece o Dr. Rodrigo.<\/p>\n<hr \/>\n<h4><strong>Para o paciente<\/strong><\/h4>\n<p style=\"text-align: justify\">Para ajudar a difundir informa\u00e7\u00f5es sobre a fibrose c\u00edstica, salve as imagens e links abaixo e compartilhe com pacientes, amigos e familiares:<\/p>\n<p style=\"text-align: justify\"><a href=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2019\/09\/SBPT-Rede-Social-Dia-de-Conscientiza\u00e7\u00e3o-Fibrose-C\u00edstica_1_v2.png\"><br \/>\n<img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-13621\" src=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2019\/09\/SBPT-Rede-Social-Dia-de-Conscientiza\u00e7\u00e3o-Fibrose-C\u00edstica_1_v2-1024x1024.png\" alt=\"\" width=\"640\" height=\"640\" \/><\/a><\/p>\n<p style=\"text-align: justify\">Um grande avan\u00e7o no manejo da fibrose c\u00edstica foi a inclus\u00e3o da triagem em rec\u00e9m-nascidos, por meio do teste do pezinho.<\/p>\n<p style=\"text-align: justify\">Se houver suspeita, a crian\u00e7a \u00e9 encaminhada a um centro de refer\u00eancia para confirma\u00e7\u00e3o.<\/p>\n<p style=\"text-align: justify\">O teste do suor \u00e9 o mais difundido. Quando o n\u00edvel de cloro \u00e9 superior a 60 milimoles por litro em duas dosagens, associado a um quadro cl\u00ednico caracter\u00edstico, o diagn\u00f3stico \u00e9 firmado.<\/p>\n<p><a href=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2019\/09\/SBPT-Rede-Social-Dia-de-Conscientiza\u00e7\u00e3o-Fibrose-C\u00edstica_3_v3.png\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-13624\" src=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2019\/09\/SBPT-Rede-Social-Dia-de-Conscientiza\u00e7\u00e3o-Fibrose-C\u00edstica_3_v3-1024x1024.png\" alt=\"\" width=\"640\" height=\"640\" \/><\/a><\/p>\n<p style=\"text-align: justify\">\n<p><a href=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2019\/09\/SBPT-Rede-Social-Dia-de-Conscientiza\u00e7\u00e3o-Fibrose-C\u00edstica_2_v2.png\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-13623\" src=\"https:\/\/d1xe7tfg0uwul9.cloudfront.net\/sbpt-portal\/wp-content\/uploads\/2019\/09\/SBPT-Rede-Social-Dia-de-Conscientiza\u00e7\u00e3o-Fibrose-C\u00edstica_2_v2-1024x1024.png\" alt=\"\" width=\"640\" height=\"640\" \/><\/a><\/p>\n<hr \/>\n<p style=\"text-align: justify\"><strong>Mais informa\u00e7\u00f5es<\/strong> &#8211; <a href=\"https:\/\/sbpt.org.br\/portal\/\/dia-nacional-fibrose-cistica-sbpt\/\" target=\"_blank\" rel=\"noopener noreferrer\">Fibrose c\u00edstica: novos medicamentos trazem mudan\u00e7as no manejo de pacientes<\/a>.<\/p>\n<p><a href=\"https:\/\/sbpt.org.br\/portal\/\/publico-geral\/fibrose-cistica-diagnostico-tratamento\/\" target=\"_blank\" rel=\"noopener noreferrer\">Fibrose c\u00edstica: como \u00e9 o diagn\u00f3stico e tratamento.<\/a><\/p>\n<!-- AddThis Advanced Settings generic via filter on the_content --><!-- AddThis Share Buttons generic via filter on the_content -->","protected":false},"excerpt":{"rendered":"<p>Dia 5 de setembro \u00e9 o Dia Nacional de Conscientiza\u00e7\u00e3o e Divulga\u00e7\u00e3o da Fibrose C\u00edstica (FC). Veja as atualiza\u00e7\u00f5es da SBPT sobre o tema. 14\/08\/2020 &#8211; Podcast Direto ao Ponto: Efetividade de um protocolo de tratamento de erradica\u00e7\u00e3o em fases da Pseudomonas aeruginosa em crian\u00e7as com fibrose c\u00edstica no Brasil &#8211; Dra. Fab\u00edola Villac Adde: [&hellip;]<!-- AddThis Advanced Settings generic via filter on get_the_excerpt --><!-- AddThis Share Buttons generic via filter on get_the_excerpt --><\/p>\n","protected":false},"author":3,"featured_media":17050,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"footnotes":""},"categories":[68],"tags":[675,164,875,876],"class_list":["post-17032","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","tag-cftr","tag-fibrose-cistica","tag-teste-do-pezinho","tag-teste-do-suor"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Setembro: m\u00eas de conscientiza\u00e7\u00e3o sobre a fibrose c\u00edstica<\/title>\n<meta name=\"description\" content=\"Dia 5 de setembro \u00e9 o Dia Nacional de Conscientiza\u00e7\u00e3o e Divulga\u00e7\u00e3o da Fibrose C\u00edstica (FC). 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